GLOBAL Research & Medical Care Roundtable at NDSC
Global Down Syndrome Foundation Research & Medical Care Roundtable
What Parents, Self-Advocates & Caregivers Should Know
Join us! Thursday, July 24, 2025
NDSC 53rd Annual Convention, Hilton Anatole, Dallas, TX
Co-Organized with the NDSC, the GLOBAL Roundtable is a free benefit and features internationally renowned scientists and medical professionals. Important topics to be covered include updates on:
- Physical Fitness and Activity
- Advancements in Alzheimer’s Treatment
- Groundbreaking Clinical Trials
- Immune System Conditions
- Obstructive Sleep Apnea
- Supporting Communication




Joaquín Espinosa, PhD
Executive Director, Linda Crnic Institute for Down Syndrome; Professor in the Department of Pharmacology at the University of Colorado School of Medicine
An Important Update on Groundbreaking Clinical Trials & Research Benefiting People with Down Syndrome
Melissa Parisi, PhD, MD
Chief of the Intellectual and Developmental Disabilities (IDD)
Insights from the INCLUDE Project with a Focus on Development and Behavior

Michael Rafii, MD, PhD
Professor of Clinical Neurology at the Keck School of Medicine and Medical Director of the Alzheimer’s Therapeutic Research Institute (ATRI)
Breaking New Ground in Alzheimer’s: Cutting-Edge Diagnostics, Treatment, and the Unique Risks for Individuals with Down Syndrome

Thessa Hilgenkamp, DPT
Assistant Professor Physical Therapy at University of Nevada Las Vegas
Physical Activity and Fitness of Individuals with Down Syndrome

Ignacio Tapia, MD
Chief of the Division of Pediatric Pulmonology at the University of Miami Miller School of Medicine
Obstructive sleep apnea: Rethinking Conventional Treatments and Exploring Hypoglossal Nerve Stimulation

Noemi Spinazzi, MD
Medical Director, Down Syndrome Clinic at UCSF Benioff Children’s Hospital Oakland
Parenting with Your Pediatrician to Support Language: Early Medical and Developmental Intervention
Michelle Sie Whitten, MA
Co-Founder, President & CEO, Global Down Syndrome Foundation
GLOBAL Update & Moderator Introductions
Megan Bomgaars
Advocate, Public Speaker, Artist, Entrepreneur, and Star of A&E’s Emmy Award-Winning Docuseries “Born This Way”
What Research & Medical Care Means to Me
Bryn Gelaro, MA
Vice President of Research & Medical Care, Global Down Syndrome Foundation
Welcome Remarks/Medical Care Guidelines
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