Indiana Down Syndrome Medical Care Centers

There are currently 3 Down syndrome medical care centers in Indiana:

Developmental Medicine, Riley Children’s Health, IU Health Physicians, Indiana University School of Medicine, Indianapolis and Carmel, IN
Affiliation: Riley Hospital for Children at Indiana University Health
Summary: The Down Syndrome Program at Riley Hospital for Children at Indiana University Health brings together specialists from many clinical areas to address the medical and psychosocial needs of children with Down syndrome. In this program, developmental pediatricians and pediatric nurse practitioners, along with members of the multidisciplinary team including pediatric social workers, pediatric occupational therapists, physical therapists and certified speech pathologists work closely with the primary care physician to help each child achieve his or her optimal potential. We also refer the family to local resources for therapy and developmental programs. When your child is seen in our program, he or she will get a coordinated, individualized evaluation. Your child will be seen by a board certified pediatrician who specializes in children with special developmental needs. A nurse practitioner, dietitian, speech therapist, occupational and physical therapists and a social worker are also part of the team and may be consulted if needed following discussion with your doctor. Our Neonatology Department collaborates with our Developmental Pediatrics Department to treat newborn babies who have Down syndrome and educate their families. Once babies with Down syndrome have been evaluated in the neonatal intensive care unit (NICU) and any immediate necessary treatments have been provided, the Down Syndrome Program will work with you to coordinate ongoing care.
Ages Served: All ages
Hours and Days of Operation: Monday through Friday, 8:00 AM-4:30 PM
Address: Riley Hospital for Children at IU Health: 1002 Wishard Blvd., Suite 2120, Indianapolis, IN, 46202

AND

Riley Children’s Health at IU Health North: 11700 N Meridian St., Carmel, IN, 46032
Website: https://www.rileychildrens.org/practice-location/developmental-pediatrics-pediatric-care-center
Appointments: Request an Appointment Web Form: https://www.rileychildrens.org/form/request-an-appointment

Pediatric Care Center Team, Indianapolis: (317) 944-4846

Referring providers should fill out form at: https://cdn.rileychildrens.org/resources/developmental-pediatrics-consultation-request-form-160718.pdf?mtime=20160725145207&focal=none and fax it to the dedicated referral fax line at 317-944-9760
Phone Number: 317-944-5000
Clinical Director: Dr. Marilyn Bull – Medical Director of the Riley Down Syndrome Program; Charlene Davis, RN, CPNP – Program Coordinator
Services provided:    
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Feeding Specialist
Other Services  

The Center for Youth & Adults With Conditions of Childhood (CYACC): The center helps youth ages 11 to 22 with chronic health conditions move from seeing pediatric physicians to adult care physicians. Special healthcare needs may include: Chronic health conditions, Intellectual disabilities, Physical disabilities, and Chronic mental illness. More info at website: https://www.rileychildrens.org/departments/center-for-youth-adults-with-conditions-of-childhood. The CYACC accepts patient referrals from families, community organizations and healthcare providers throughout Indiana. For CYACC, call 317-880-0953 or email cyacc@iupui.edu.

  
Year Established: 1986  
Patients with Down Syndrome Seen Annually: Approx. over 800
Length of Waitlist: Varies on case-by-case basis; New patients less than 5 years old seen within 4 to 6 weeks
Medicaid Accepted? Yes  
Insurance Accepted? Yes  

Deaconess Riley Children’s Specialty Center – Down Syndrome Clinic, Newburgh, IN
Affiliation: Deaconess Hospital and Riley Hospital for Children
Summary: For patients with Down syndrome, we offer an outpatient pediatric specialty care clinic atop our14 ongoing specialty services and clinics in the Deaconess Riley Children’s Specialty Center located on our Gateway Campus. In just six months, we provided more than 4,000 patient visits for kids with serious and complex medical issues, including Down syndrome. That saves families time and money – an estimated 350 mile trip from Evansville to the Riley Hospital in Indianapolis and back and about $200 in gas money for each office visit! Call for appointments.
Ages Served: Birth – Age 18 *may vary depending on location

 
Hours and Days of Operation: Monday through Friday 8a-4p (CST)
Address: Gateway Campus: 4209 Gateway Blvd. Suite 1100, Newburgh, IN 47630
Website: Website: https://www.deaconess.com/Services/Childrens-Services/Deaconess-Riley-Children%e2%80%99s-Services

Facebook: https://www.facebook.com/DeaconessHealthSystem

Instagram: https://www.instagram.com/deaconesshealth/  
Contact: https://www.deaconess.com/Services/Childrens-Services/Contact-Us
Appointments: 812-858-3131, Schedule upon referral from primary care physician
Phone Number: Fax for Referrals: 812-858-3140
Clinical Director: Jerrica McDonald, Practice Manager
Services Provided:    
Behavioral MD
Psychologist
Nutritionist
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Nurse Practitioner
Genetic Counselor
Clinical Care Coordinator
Geneticist/Pediatrician
Other Services Provided: Cardiology, electrophysiology cardiology, endocrinology, pulmonology, nephrology, urology, gastroenterology, infectious disease, psychiatric medication management, NICU developmental follow-up, autism evaluations (ages 18-42 months), Riley surgery follow-up.
Year Established: 2006  
Length of Waitlist: Varies based on specialty
Medicaid Accepted? Indiana, Illinois, and Kentucky Medicaid Accepted  
Insurance Accepted? Yes  

Down Syndrome Clinic, Indianapolis, IN
Affiliation: Peyton Manning Children’s Hospital
Summary: Our center offers comprehensive appointments in our Down Syndrome Clinic to children birth-7 years. Needs are assessed by the following providers: Medical Genetics, Genetic Counselor, Endocrinology, ENT, and Audiology. Support services available as outpatient referrals include Social Work, Dietician, Speech, Occupational, and Physical therapies. All other pediatric specialist referrals from the Peyton Manning Children’s Hospital service line are made on an as needed basis.
After age 7 years, patients are transitioned to Medical Genetics Clinic for follow up with Dr. Escobar or the Medical Genetics Nurse Practitioner. After age 18 years, patients are transitioned out of clinic to all adult services. All new patient referrals over the age of 12 years, are reviewed on a case by case basis to best meet patient needs.
Ages Served: Birth – Age 7
Hours and Days of Operation: Down Syndrome Clinic: 8AM-12PM 3rd Wednesday every month
Medical Genetics: Mon-Fri 8AM-4PM
Address: 8402 Harcourt Rd. Suite 300, Indianapolis, IN 46260
Website: https://healthcare.ascension.org/locations/indiana/inasc/pmch/our-locations/indianapolis-peyton-manning-childrens-hospital
Appointments: Phone: 317-338-5288 Fax: 317-338-7154
Phone Number: 317-338-5288
Clinical Director: Luis F. Escobar, MD
Services provided:
Behavioral MD
Psychologist
Registered Dietician
Physical Therapist
Occupational Therapist
Family Practitioner
Apraxia Specialist
Speech and Language Pathologist
Audiologist
Social Worker
Education/Inclusion Specialist
Pediatric Nurse Practitioner
Genetic Counselor
Feeding Specialist
Geneticist/Pediatrician
Other Services Provided: Endocrinology, ENT
Patients with Down Syndrome Seen Annually: 350-400
Length of Waitlist: No waitlist, wait time varies with clinical concerns
Medicaid Accepted? Yes
Insurance Accepted? Yes

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