グローバル・ウェビナー
Congenital Heart Disease: What You Need to Know
Through the Lifespan
Tuesday, January 14, 2025
12pm – 1:15pm MT
GLOBAL Webinars are an important benefit for our Members. Held quarterly, these 1+ hour-long webinars cover topics across the lifespan. Webinars are FREE for GLOBAL Members and $10/webinar for non-Members. If you have a family member or dear friend with Down syndrome, this webinar is for you!
Thank You Dr. Hoskoppal for an exciting webinar that covered:
- Down syndrome and congenital heart disease
- Long term follow up of adults with congenital heart disease and Down syndrome
- Long term follow up of patients with Down syndrome without known congenital heart disease
Arvind Hoskoppal, MD
Dr. Hoskoppal is the director of the Adult Congenital Heart Disease Program at UPMC, a joint program of the Heart Institute at UPMC Children’s and the UPMC Heart and Vascular Institute at UPMC Presbyterian. He is also the co-director of the UPMC aortic center. As a national leader in adult congenital heart disease, he brings a special focus on advanced echocardiography including transesophageal echocardiography and aortopathies.
Dr. Hoskoppal graduated from Bangalore University, India in 2002. He then pursued a Masters in Health Finance and Management from Johns Hopkins University. He then completed his residency in a combined Med-Peds program at Creighton University Medical Center, followed by pediatric Cardiology fellowship at UCSF Medical Center. With an interest in adult congenital heart disease (ACHD), he further subspecialized, completing an ACHD fellowship the Mayo Clinic. He most recently received his masters in business administration (MBA) from the university of Pittsburgh Katz school of business (2022).
Save The Date – Upcoming Webinars
Tuesday, April 8, 2025
Alzheimer’s Trials and Treatments for Individuals with Down Syndrome
Michael S. Rafii, MD, PhD
In case you missed it…
How to Manage Swallowing Issues in Children with Down Syndrome
Dr. Emily DeBoer, Arwen Jackson, & Jennifer Maybee
What Families Need to Know! A Pediatrician’s Tips for Understanding Common Lab Results
Dr. Kishore Vellody
Healthy Sexuality in Adults with Down Syndrome
Dr. Katie Frank
画期的な「成人ダウン症のためのグローバル医療ガイドライン」のファミリーフレンドリー版が今すぐ入手可能です！
GLOBAL WEBINARS – MAKING AN IMPACT
8,089
Individuals Educated
48
Expert Speakers
50
States Participated
53
Countries Reached
65,000+
Webinar Pageviews
Q&A WITH OUR EXPERTS – A VALUABLE MEMBERSHIP BENEFIT
SLEEP APNEA ACROSS THE LIFESPAN
IN PEOPLE WITH DOWN SYNDROME
Q: How does one define moderate vs severe sleep apnea? What percent in oxygen saturation during OSA episodes is the average range?
A: They are defined based on the obstructive apnea hypopnea index, which is the number of obstructive episodes during sleep divided by the hours of sleep. Many patients experience drops in oxygen saturation during obstructive episodes. These drops are variable and range from very mild to severe down to 60-70%.
DOWN SYNDROME REGRESSION DISORDER: THE LATEST RESEARCH AND PROMISING TREATMENTS
Q: What age are you seeing regression symptoms starting?
A: I think that when we’ve looked at our population level data, the mean age at onset is about 18. We see a heavy clustering in the late teen years, early twenties, and the reason why we’ve come up with this particular age range is because younger than 10, the chances that this may be autism or some other biochemical or genetic phenomenon is much higher. And similarly, over 30 is where we start to kind of bridge that gap into early onset Alzheimer’s, although that is still very young.
Your Library of GLOBAL Webinars & Experts
ACROSS THE LIFESPAN
Joaquín Espinosa, PhD
Stopping the Autoimmune Attack in Down Syndrome: New Breakthroughs and Clinical Trials
ACROSS THE LIFESPAN
Dr. Emily DeBoer, Arwen Jackson & Jennifer Maybee
How to Manage Swallowing Issues in Children with Down Syndrome
ACROSS THE LIFESPAN
Dr. Kishore Vellody
What Families Need to Know! A Pediatrician’s Tips for Understanding Common Lab Results
ACROSS THE LIFESPAN
Dr. Joaquín Espinosa
An Important Update on Groundbreaking Clinical Trials & Research for People with Down Syndrome
ACROSS THE LIFESPAN
Drs. Leonard Abbeduto & Angela Thurman
ACROSS THE LIFESPAN
Drs. Ignacio Tapia & Rachel Whelan
Sleep Apnea Across the Lifespan in People with Down Syndrome
ACROSS THE LIFESPAN
Drs. Steven Perlman & Marc Ackerman
Dental Care Across the Lifespan of Patients with Down Syndrome
ACROSS THE LIFESPAN
Drs. Joaquín Espinosa & Jonathan Santoro
Down Syndrome Regression Disorder: The Latest Research and Promising Treatments
PEDIATRIC
Dr. Nicole Baumer, MEd
ACROSS THE LIFESPAN
Drs. Emily McCourt & Michael Puente
Eye Research & Eye Care for Individuals with Down Syndrome Across the Lifespan
PEDIATRIC
Drs. Lina Patel & Debbie Fiddler
Executive Function Skills in Everyday Life: From Research to Intervention
ACROSS THE LIFESPAN
Dr. Joaquín Espinosa
PEDIATRIC
Dr. Karen Remley
How the CDC Supports People with Down Syndrome & An Update on COVID-19 Vaccinations
TEEN & ADULT
Dr. Sarah Mann
Strength, Stability, Balance, and Endurance: Purposeful PT for Teens and Adults with Down Syndrome
ADULT
Dr. Brian Chicoine & Guideline Co-Authors
ACROSS THE LIFESPAN
Dr. Lina Patel, PsyD
CPAP, Hearing Aids, & Glasses, Oh My! How to Help my Child & Adult Wear their Medical Equipment
PEDIATRIC
Dr. Francis Hickey
Pediatric Medical Care Guidelines for Down Syndrome: What Families Need to Know
ACROSS THE LIFESPAN
Michelle Sie Whitten, MA & Kevin Brennan
Self-Advocates Win Landmark Federal Funding for Research: Join GLOBAL – Join the Movement
ACROSS THE LIFESPAN
Dr. Michael Yeager
Take A Deep Breath: Lung Infection & Cognition in Down Syndrome
PEDIATRIC
Patricia C. Winders, PT
ADULT
Dr. Huntington Potter & Bryn Gelaro, LSW
Supporting Aging Adults with Down Syndrome and Alzheimer’s Disease
PEDIATRIC
Sie Center Specialists
Developing an Individualized Feeding Plan for Your Child with Down Syndrome
ACROSS THE LIFESPAN
Dr. Joaquín Espinosa
ADULT
Dr. Dennis McGuire & Bryn Gelaro, LSW
Promoting Skills to Survive & Thrive in the Teen & Adult Years
PEDIATRIC
Kathleen Mays, MS, CCC-SLP
Multimodal Approach to Teaching Children with Down syndrome Speech & Language Skills
Important Notice
The Global Down Syndrome Foundation’s employees and/or volunteers are NOT acting as your medical professional or attorney. Responses you receive via electronic mail, phone, or in any other manner DO NOT create or constitute a doctor-patient or attorney-client relationship between you and the Global Down Syndrome Foundation (GLOBAL), or any employee of, or other person associated with, GLOBAL.
Information received from GLOBAL’s employees or volunteers, or from this website, should NOT be considered a substitute for the advice of a medical professional or lawyer. GLOBAL DOES NOT provide any medical or legal advice. You should consult with your own doctor or lawyer for medical or legal advice. This website is a general service that provides information over the internet. The information contained on this website is general information and should not be construed as medical advice to be applied to any specific factual situations.
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