Sarah Curfman
Executive Director, Down Syndrome Association of Minnesota
Sarah Curfman has more than 20 years of experience as a nonprofit leader in Minnesota and across the country. She is the Executive Director of the Down Syndrome Association of Minnesota (DSAMN), a statewide nonprofit and advocacy organization dedicated to empowering, connecting, and celebrating individuals with Down syndrome and their families.
Teresa DeVincenzi
Executive Director, Down Syndrome Connection of the Bay Area (DSCBA)
Teresa’s journey with the DSCBA began in 2015 and since then, she has served in a variety of leadership roles, including Director of Programs and Data Integrity, before stepping fully into the Executive Director role. Teresa leads a team of 30-plus amazing individuals who share a passion for empowering, inspiring, supporting, and celebrating individuals with Down syndrome and their families within the nine counties of Northern California’s greater Bay Area.
Read more about Teresa DeVincenzi
Jennifer Ford
Executive Director, Down Syndrome Guild of Dallas (DSG)
Jennifer Ford was named Executive Director of the Down Syndrome Guild of Dallas (DSG) in 2014. She began with the DSG in 2007. After a couple of years on staff, Jennifer utilized her Texas Educator Certificate and taught elementary special education in Castleberry ISD.
Heidi Haines
Executive Director, Rocky Mountain Down Syndrome Association
Heidi Haines is dedicated to making a positive impact on the world, a commitment evident in her role as the Executive Director of the Rocky Mountain Down Syndrome Association since 2023. With twelve years of experience in nonprofit advocacy, policy development, partnership building, self-advocacy group creation, team management, and nonprofit administration, Heidi is well-equipped for her position.
Toni Mullee
Executive Director, Down Syndrome Association of Northeast Ohio
Toni Mullee is the Executive Director of the Down Syndrome Association of Northeast Ohio (DSANEO), an organization that serves 1,100 individuals with Down syndrome and their families in the Cleveland area. She resides in Bay Village, Ohio with her husband Tom. She is mom to two daughters and Nona to three grandchildren.
Amy Navejas, JD
Executive Director, North Carolina Down Syndrome Alliance
Amy Navejas, JD, has been a nonprofit executive in North Carolina for nearly her entire career. She attended the University of North Carolina at Chapel Hill, where she obtained dual degrees in Psychology and Political Science. She then went on to Campbell University’s Norman A. Wiggins School of Law where she received her Juris Doctorate.
Debbie Revels
Executive Director, Down Syndrome Association of Jacksonville
Debbie is the Executive Director of the Down Syndrome Association of Jacksonville. As a native to Jacksonville, Florida, she is one of the founding members of DSAJ and has been actively involved since its establishment in 1989.
Sarah Soell
Executive Director, Down Syndrome Association of Central Oklahoma
Sarah Soell is the Executive Director for the Down Syndrome Association of Central Oklahoma. She has been a member of DSACO since 2006. Sarah never turns down a hug and will always ensure individuals with Down syndrome are accepted, respected, included, and given the opportunity and choice to create their own meaningful pathway to success.
Erin Suelmann
Executive Director, Down Syndrome Association of Greater St. Louis
Since 2016, Erin has served as Executive Director of DSAGSL, where she previously served as Director of Programs. Among other volunteer positions, Erin has served as both Secretary and Vice President of Down Syndrome Affiliates in Action. Her passion for the disability field comes from life with her brother, Andrew, who happens to have Down syndrome and who now lives just a few houses away!
Amy Van Bergen
Former Executive Director, Down Syndrome Association of Central Florida
Amy Van Bergen has been a nonprofit leader since 1991 and served as executive director of the Down Syndrome Association of Central Florida until her retirement from full-time work in 2016. Prior to that she was an award-winning newspaper and magazine editor. In 2010, she helped found Down Syndrome Affiliates in Action, the first trade association for parent-support groups and she also served on advisory groups for both the National Down Syndrome Congress and National Down Syndrome Society. Amy is the mother of five adult children, including her son Wils who has Down syndrome, as well as Mamey to six grandchildren.
Read more about Amy Van Bergen
Experience our inspirational and groundbreaking videos and photos. Our children and self-advocates are beautiful AND brilliant!
Make sure your local Representatives are on the Congressional Down Syndrome Task Force.
Keep up with research news, upcoming programs, events and educational conferences.
