GLOBAL Recap of the 2020 NDSC Annual Convention From Your Couch

Engaging Roundtable Discussion

During GLOBAL’s Roundtable, speakers presented on COVID-19, breakthrough research, & more.
 GLOBAL’s 2020 NDSC Research & Medical Care Roundtable Recap



Frank Stephens, GLOBAL Ambassador &
Q-Award winner, The Importance of Research for People with Down Syndrome

Ed Janoff, MD, CU Professor of Medicine-Infectious Disease, Living Safely with Down Syndrome in the Age of COVID-19

Karen Gaffney, GLOBAL Q-Award winner,
Living Safely with Down Syndrome in the
Age of COVID-19

Kelly Sullivan, Boettcher Investigator & Assistant Professor, Crnic Institute, Immune System Dysregulation in Down syndrome

Mike Rafii, MD, PhD, Medical Director of the Alzheimer’s Therapeutic Research Institute, Alzheimer’s Disease in Down Syndrome


Joaquin Espinosa, Executive Director of the Crnic Institute, Immune modulation in Down syndrome and COVID-19

Mike Ybarra, MD, FAAEM, FACEP, PhRMA,
The Biopharmaceutical Industry’s Efforts
to Beat Coronavirus

Michelle Sie Whitten, MA, GLOBAL President & CEO, Our Response to COVID-19 and the “COVID 19 & Down Syndrome Q&A” Collaborative

Kent McKelvey, MD, Associate Professor in Medical Genetics & Family Medicine, Medical Guidelines For Adults with Down Syndrome

Melissa Parisi, MD, PhD, NICHD National Institutes of Health, DS-Connect Registry Manager, Promising Research at the NIH
 

GLOBAL Receives Prestigious Award

NDSC presented GLOBAL with the 2020 Pueschel-Tjossem award for the Global Medical Care Guidelines for Adults with Down Syndrome. GLOBAL President & CEO Michelle Sie Whitten and Bryn Gelaro, LSW, who have worked diligently over the past several years to accomplish this, accepted the award.

 

Zack Gottsagen Q&A

Zack Gottsagen was the keynote for the closing ceremony of the NDSC Annual Convention From Your Couch. Zack is an award-winning actor, best known for his breakout film The Peanut Butter Falcon, where he starred alongside Shia LaBeouf and Dakota Johnson. GLOBAL is proud to be an Executive Producer of the film.

Captivating Workshops

GLOBAL scientists, clinicians, Down syndrome experts, and self-advocates presented thoughtful workshops on topics and resources for adolescents and adults with Down syndrome, parents and caregivers, medical professionals, and more.

Promoting Strengths and Adaptive Resources in Persons with Down Syndrome
Dennis McGuire, PhD, Senior Consultant of Global Down Syndrome Foundation

Common Questions (And Answers!) about Health Conditions in Adolescents and Adults with Down Syndrome
Brian Chicoine, MD, Medical Director of Advocate Medical Group Adult Down Syndrome Center

Desensitization to Use of Medical Equipment and Procedure Related Distress
Lina Patel, MD, Director of Psychology at Sie Center for Down Syndrome

An Important New Resource: Global Medical Care Guidelines for Adults with Down Syndrome
Michelle Sie Whitten, President & CEO of Global Down Syndrome Foundation
Bryn Gelaro, LSW, Director of Adult Initiatives & Special Projects at Global Down Syndrome Foundation
Brian Chicoine, MD, Medical Director of Advocate Medical Group Adult Down Syndrome Center

Research & Medical Care Roundtable

For more information on any of our workshops or speakers, contact events@globaldownsyndrome.org

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