GLOBAL Webinars
How to Manage Swallowing Issues in Children with Down Syndrome
Wednesday, July 10, 2024
12pm – 1:15pm MT
GLOBAL Webinars are an important benefit for our Members. Held quarterly, these 1+ hour-long webinars cover topics across the lifespan. Webinars are FREE for GLOBAL Members and $10/webinar for non-Members. If you have a family member or dear friend with Down syndrome, this webinar is for you!
In this session, Drs. DeBoer, Jackson, and Maybee will discuss:
• An overview of dysphagia (difficulty swallowing), including the characteristics and different types of dysphagia seen in children with Down syndrome
• The impacts dysphagia can have on health and quality of life across the pediatric age span
• How a medical team can support families and children with dysphagia
• Tips for advocating for thoughtful dysphagia care and manageable feeding plans
• How research is exploring dysphagia in Down syndrome and how innovations in clinical care are being tested
Emily DeBoer, MD
Arwen Jackson, MA, CCC-SLP
Jennifer Maybee, OTR, MA, CCC-SLP
Arwen Jackson and Jenny Maybee are speech-language pathologists and Emily DeBoer is a pulmonologist at Children’s Hospital Colorado. Arwen, Jenny, and Emily all support children with Down syndrome, children with feeding and swallowing difficulties, and children with complex pulmonary and airway disorders through several clinical programs at the hospital, including the Sie Center for Down syndrome, the Aerodigestive and Dysphagia Management Clinics, and the Swallowing Disorders Clinic. Arwen, Jenny and Emily lead several research and quality improvement projects designed to improve our field’s understanding of dysphagia and pulmonary disease in Down syndrome. They have authored several peer-reviewed journal articles and have presented at multiple national and international conferences on their work. Arwen, Jenny and Emily authored a book chapter in the recently published book Pediatric Aerodigestive Medicine titled “The Multidisciplinary Care of Children with Down Syndrome”.
Save The Date – Upcoming Webinars
Wednesday, July 10, 2024
How to Manage Swallowing Issues in Children with Down Syndrome
Arwen Jackson, MA CCC-SLP
Jennifer Maybee, OTR, MA, CCC-SLP
Emily DeBoer, MD
Tuesday, October 1, 2024
Clinical Trials that Could Improve Health for People with Down Syndrome – Considerations Before you Enroll
Joaquin Espinosa, PhD
In case you missed it…
An Important Update on Groundbreaking Clinical Trials & Research for People with Down Syndrome
Dr. Joaquin Espinosa
Communication Development and Down Syndrome: Strengths and Challenges, Patterns of Change, and Potential Interventions
Drs. Leonard Abbeduto and Angela Thurman
Sleep Apnea Across the Lifespan in People with Down Syndrome
Drs. Ignacio Tapia and Rachel Whelan
The Family-Friendly version of our groundbreaking GLOBAL Medical Care Guidelines for Adults with Down Syndrome is available NOW!
FOR FAMILIES:
Request Printed Copies!
FOR CLINICIANS:
Download Our Version for
Medical Professionals Today
GLOBAL WEBINARS – MAKING AN IMPACT
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Q&A WITH OUR EXPERTS – A VALUABLE MEMBERSHIP BENEFIT
SLEEP APNEA ACROSS THE LIFESPAN
IN PEOPLE WITH DOWN SYNDROME
Q: How does one define moderate vs severe sleep apnea? What percent in oxygen saturation during OSA episodes is the average range?
A: They are defined based on the obstructive apnea hypopnea index, which is the number of obstructive episodes during sleep divided by the hours of sleep. Many patients experience drops in oxygen saturation during obstructive episodes. These drops are variable and range from very mild to severe down to 60-70%.
DOWN SYNDROME REGRESSION DISORDER: THE LATEST RESEARCH AND PROMISING TREATMENTS
Q: What age are you seeing regression symptoms starting?
A: I think that when we’ve looked at our population level data, the mean age at onset is about 18. We see a heavy clustering in the late teen years, early twenties, and the reason why we’ve come up with this particular age range is because younger than 10, the chances that this may be autism or some other biochemical or genetic phenomenon is much higher. And similarly, over 30 is where we start to kind of bridge that gap into early onset Alzheimer’s, although that is still very young.
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